Contexts of awareness in end-of-life palliative care: a grounded theory (Research Proyect FFI2016-76927-P- AEI/FEDER, UE)
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AutorHernández Padilla, José Manuel; Granero-Molina, José; Jiménez-Lasserrotte, María del Mar; Boucherant-Benavente, María; López-Rodríguez, María del Mar; [et al.]
Background/aims: Clinical communication with terminally-ill patients guarantees dignity and facilitates decision-making. This communication is not always open and different contexts of awareness have been described. In these contexts, patients may or may not know the extent of their illness and prognosis ('open awareness', 'closed awareness', 'suspected awareness' and 'mutual pretence'). The objective of this study was to understand the professional-patient communication process and the awareness contexts established in palliative care patients. Methods: A qualitative study based on Grounded Theory was designed. For data collection, ten in-depth interviews were conducted on patients included in palliative care programmes. Data analysis was performed after including the transcription of the interviews and the field notes into ATLAS.ti software for coding. An open, axial and selective coding process was carried out by using the constant comparative method and theoretical sampling. Resu...
Palliative Care and Medicine